RESOURCES

Specialists and Resources

The Scleroderma Foundation website lists Specialists and Scleroderma Centers. Below are specialists I have personally seen: Dr. Jerry Molitor - University of Minnesota I started seeing Dr. Molitor when I was first diagnosed and still see him as my specialist. He is the specialist at the Scleroderma clinic at the University. Dr. Molitor was instrumental in providing treatment and physical therapy to help me regain my flexability and mobility to remain in the workforce. He is a caring expert, involved in research, and and lucky for me he is located in the midwest since I am from North Dakota. Dr. Molitor and his staff have really gone to bat for me recently as my condition declined. They got a very promising drug called actemra approved thru insurance for me. I have had two infusions so far - Jan 2018 and Feb 2018. Dr. Daniel Furst - Pacific Arthritis - UCLA I met Dr. Furst in a clinical trial. He is a professor of medicine at UCLA Medical Center, an adjunct professor at the University of Washington - Seattle, and a research professor at the University of Florence in Italy. He has practices at the Arthritis Associates of Southern California, as well as the Seattle Rheumatology Associates in Seattle. Dr. Furst is a wealth of knowledge. He is involved in the Scleroderma foundation, research studies, and has written a book on scleroderma. He travels the states and other countries working with and training specialists. I think anyone who has scleroderma can benefit from making an appointment and meeting Dr. Furst whether you are able to continue care with him or not. I was in another study with Dr. Furst and am now seeing him as a patient. Amanda Lausch - Wound Clinic Jamestown Regional Medical Center Amanda is a wound & hyperbaric specialist at the Jamestown Regional Medical Center Wound Clinic in Jamestown, ND, which is a Healogics facility. She has an extensive knowledge of scleroderma and has been been treating my finger ulcers, and removing calcinosis promoting good tissue growth and healing in my fingers and hands. Her care has been finger-saving for me, with proactively promoting healing and minimizing any risk of infection. Dr. Lorinda Chung - Stanford University I have not met Dr. Chung personally, but have listed her here as she is the head of the trial for the treatment for calcinosis I was in. Website Resources - Scleroderma Foundation Scleroderma News ClinicalTrials.gov Scleroderma Patient-centered Intervention Network (SPIN)
Dr Jerry Molitor University of Minnesota Scleroderma Specialist
Dr Daniel Furst Pacific Arthritis and UCLA Sclerodrma and Arthritis Specialist
Dr. Lorinda Chung Stanford University
Dr. Amanda Lausch - Wound Clinic Jamestown Regional Medical Center

2018 Scleroderma

Conference Video.

Please watch this.

There is so much

new information

on what is now

known about

scleroderma, and

how fast research

is progressing.

THEY WILL FIND A

CURE!

Trial to Evaluate Efficacy and Safety of Lenabasum in Diffuse Cutaneous Systemic Sclerosis (RESOLVE-1) - Status Active No Longer Recruiting.
Mechanism of Action Video of Lenabasum
Documents and Videos
RESOURCES

Specialists and Resources

The Scleroderma Foundation website lists Specialists and Scleroderma Centers. Below are specialists I have personally seen: Dr. Jerry Molitor - University of Minnesota I started seeing Dr. Molitor when I was first diagnosed and still see him as my specialist. He is the specialist at the Scleroderma clinic at the Uni- versity. Dr. Molitor was instrumental in providing treatment and physical therapy to help me regain my flexability and mobility to remain in the workforce. He is a caring ex- pert, involved in research, and and lucky for me he is located in the midwest since I am from North Dakota. Dr. Molitor and his staff have really gone to bat for me recently as my condition declined. They got a very promising drug called actemra approved thru insurance for me. I have had two infusions so far - Jan 2018 and Feb 2018. Dr. Daniel Furst - Pacific Arthritis - UCLA I met Dr. Furst in a clinical trial. He is a professor of medicine at UCLA Medical Center, an adjunct professor at the University of Washington - Seattle, and a re- search professor at the University of Florence in Italy. He has practices at the Arthritis As- sociates of Southern California, as well as the Seattle Rheumatology Associates in Seattle. Dr. Furst is a wealth of knowledge. He is in- volved in the Scleroderma foundation, research studies, and has written a book on scleroderma. He travels the states and other countries working with and training special- ists. I think anyone who has scleroderma can benefit from making an appointment and meeting Dr. Furst whether you are able to continue care with him or not. I was in an- other study with Dr. Furst and am now seeing him as a patient. Amanda Lausch - Wound Clinic Jamestown Regional Medical Center Amanda is a wound & hyperbaric specialist at the Jamestown Re- gional Medical Center Wound Clinic in Jamestown, ND, which is a Healogics facility. She has an extensive knowledge of scleroderma and has been been treating my finger ulcers, and removing calcinosis pro- moting good tissue growth and healing in my fingers and hands. Her care has been finger- saving for me, with proactively promoting healing and minimizing any risk of infection. Dr. Lorinda Chung - Stanford University I have not met Dr. Chung person- ally, but have listed her here as she is the head of the trial for the treatment for calcinosis I was in. Website Resources - Scleroderma Foundation Scleroderma News ClinicalTrials.gov Scleroderma Patient-centered Intervention Network (SPIN)
Dr Jerry Molitor University of Minnesota Scleroderma Specialist
Dr Daniel Furst Pacific Arthritis and UCLA Sclerodrma and Arthritis Specialist
Dr. Lorinda Chung Stanford University
Dr. Amanda Lausch - Wound Clinic Jamestown Regional Medical Center
Trial to Evaluate Efficacy and Safety of Lenabasum in Diffuse Cutaneous Systemic Sclerosis (RESOLVE-1) - Status Active No Longer Recruiting.
Mechanism of Action Video of Lenabasum
Documents and Videos

2018 Scleroderma Conference Video. Please

watch

this.

There is

so much

new

information on what is now known about

scleroderma, and how fast research is

progressing. THEY WILL FIND A CURE!